My name is Ronnie Maas and in 2000 I ran my first marathon. I would have never believed the next 12 years the first marathon I ever ran, through the hills, highways and byways of Austin Texas, would be preparation for the journey that lay ahead. Since then, I have realized the parallels that the Marathon has with life. 2004 brought me to New York City for the first time, and running the marathon there was one of the most exhilarating days of my life. What I didn't know was the degree of excitement my son, Zack had knowing I finished 26.2 miles. 2007 allowed me to come back to New York City one more time, only this time would be the year I shared this finish with my mom; still, through all the miles of preparation for the distance I had no idea what life would bring.
Zack Maas has been given a guaranteed entry to the New York City Marathon, taking place November 4, 2012. He'll be making the 26.2 mile journey through all five boroughs; Staten Island, Brooklyn, Queens, The Bronx, and Manhattan. He'll finish his journey in Central Park with 40,000 other runners from all over the world. His purpose is to bring awareness and raise funds for research for EpidermolysisBullosa. One in 50,000 babies is born with EB and his sweet daughter, Riley, was one of those babies. The Jackson Gabriel Silver Foundation (www.jgsf.org) is the charity that has offered him the opportunity to make the 26.2 mile trek. We would run to the ends of the earth, if we had to, to save our own child. Come out and help us raise the funds he needs to complete 26.2 of those miles.
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The 2nd Annual Donnie-Burgers for Riley will be held on August 18, 2012 at The Prestonwood Clubhouse, 13702 Prestonwood Forest Drive, beginning at 9:00 am. We'll be holding a Bake Sale Bake-off, and Silent Auction benefiting Riley Maas, Colton Makow, and the Jackson Gabriel Silver Foundation (www.JGSF.org)
Julie Makow: After an uneventful pregnancy Colton was born on January 26th 2011 suffering complications at birth. Because of the birth injury, he suffered brain damage as well as stage 4 kidney disease due to lack of oxygen. He spent 2 months in the NICU at Texas Children's Hospital. Colton is a strong boy who has overcome MANY obstacles and proven countless doctors wrong. He has done so many things that doctors said he would never do. However, at about 5 months old Colton began vomiting constantly. The doctors believed it was reflux, something many babies have. He was treated but never got completely better. After 5 separate hospital stays due to dehydration from vomiting, they diagnosed him with a rare disorder called Eosinophilic Gastroenteritis. This is a fairly new disease for which there is no cure. EoE is an inflammatory condition in which the wall of the esophagus becomes filled with large numbers of eosinophil, a type of white blood cell that promotes inflammation. We are new to this diagnosis and realize it is a long road with many unknowns. There are few experts therefore most people need to travel in order to get the treatment their child needs. At this point Colton is fed 24/7 through a feeding tube with an elemental formula. While we hope someday he will be able to eat food, he currently cannot eat any food, something so many take for granted. For more information go to www.apfed.org.
EpidermolysisBullosa (EB) and Eosinophilic Gastroenteritis (EoE) are listed on the National Organization for Rare Disorders, meaning that these two disorders affect fewer than 200,000 Americans. These two children are neighbors born within a few months of one another; help us give them a voice. Come see us on August 18, 2012.